She is having a hell of a time...to say the least. I can't begin to catch you up on all that has been going on. Jen was on the ventilator and showed signs of healing. They extubated her a week or so after she was put on...that only lasted a day. She was struggling and they intubated her the next day. The drs were confident that Jen needed a few more days to heal. We also needed to find a happy medium between Jens sedation and her level of consciousness. She was having high anxiety and that hindered the success of her doing the work of breathing on her own. Turns out now her lungs were not as healed as much as we thought they were and that other major problems were coming our way. At the two week mark they had to do a tracheotomy because prolonged ventilation (tubes down her throat) leads to infection. The trach was not so bad. They seemed to have her in a comfortable place and Jen was beginning to show signs of consciousness. She could shake her head and even at times smile. Squeeze your hand etc. Those events were short lived and within a couple of days our worlds took an even more dramatic turn. Bad news on top of bad news on top of bad news. Days of one problem after the other was all we had. All I can do is sum up what has been happening. Jen has three major problems...none of these problems are treated the same way and in fact treatment for each problem only aggravates the other...so much so that the drs have expressed how concerned they are and that they are doing everything they can. Basically, they are exhausting every option trying to find a balance in the treatment.
Jen has severe cmv(a virus) gvhd (graft vs host disease) and her lung issues. She is heavily sedated and is on the ventilator at an elevated setting. It's all a waiting game and unfortunately it takes days to hear results.
We are asking you to keep the prayers coming. It helps us to stay hopeful. We do still have hope. Jen is our miracle girl...all we ask each day is to receive good news to keep us going. We will take anything. And FINALLY today we did (really good news)......so we continue to hope, pray and be grateful.
Love you all.
We think about and pray for all of you every day. Stay strong for her. You are in our prayers always. I hope that this is only the darkness before the dawn. Stay strong - you have a lot of people praying for you.
ReplyDeleteYou are in our prayers every single day. Please stay strong. Love you all!
ReplyDeleteYou are all in our prayers and hearts. Thank you for posting; you've been in our thoughts constantly but we didn't want to bug you. All our love and prayers, Pam and Rod
ReplyDeleteIt's crazy that the internet brings us closer together. Who would have ever thought it?
ReplyDeleteTechnology! Here's hoping that technology is able to sustain Jen, and here's knowing that good old fashion prayers and positive thoughts and energy will aid her along the way.
Thanks for posting. I think about you all every day.
Thank you for the update - I have been checking the website every day to see if there is any news.
ReplyDeleteWe are thinking of all of you and keeping you in our prayers.
Laura, Stuart and Clay
Thank you for posting on the blog....I check everyday. You are all in my thoughts and prayers daily!!! Stay strong!!! Jen is a strong person!!
ReplyDeleteLove
"maugie"
Our thoughts and prayers are with you all. Thanks for the update.
ReplyDeleteTerry, Mary Anne and the Boys
We continue to pray for you and your family. Thank you for posting, I know how hard it is to find the time to write but we look everyday for good news. Thank you for letting us spend time with Jen and you at the hospital and pray with her. It was a privilege to be there.
ReplyDeleteWendy and Tom Coleman