Isn't that the name of a band. Ironically, they play music in these procedure rooms as they are torturing you. They even let you pick it! I didn't pick Spinal Tap
Bone marrow biopsy and spinal tap yesterday. I am extremely sore today and polka dotted! My Mom was present during the entire procedure (for both) and said it was a little rough. Apparently, my bones are extremely strong which makes it difficult for them to get in for marrow and fluid. I asked for complete sedation which I thought meant they put you out and you wake up when it's over. I woke up whenever I felt pain-which totally sucked!!!
I started the day with an EKG which took a total of 10 seconds-now that's the way I like it. Went onto a blood draw-in which they were suppose to put in an IV & someone didn't so I ended up getting poked again to have the IV inserted for the procedure. I guess I should be happy I am getting a port and that will eliminate all of these pokes and bruises. I look like a junky. I was starving by the end of the day-stopped at Red Robin for a California Chicken Burger and headed home and to the bed! The weather is absolutely amazing here and was 85 today. The view from the back of the house is beyond belief and we wake up to the most amazing sunrises. A true gift.
There are positives all around me and I have to learn to focus on them. Woke up and took it easy this morning. I feel like I am trapped in a 90 year old body-everything is so stiff. Finally around 3 we ventured out and "did the Puyallup" which is the Western Washington State Fair that they have every September. It is much different than the last Puyallup I did. I think the boys enjoyed it. I am ready for a bath & bed.
I love you-every single one of you
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Hi honey,
ReplyDeleteSounds like yesterday was quite an ordeal. Getting out and doing something fun after having them torture you is the best way to handle the really bad days. Hang in there....thinking about you every day.
We leave No. Wales tomorrow and head back to FL. We'll make sure everything is unplugged and locked up.
Love, Mom Mom and Tom
Hey Jen,
ReplyDeleteWhen I returned from vacation I was thrilled to hear that they found a 10/10 match. I am praying for you regularly and thinking about you frequently! You are one of the strongest people I know and you are an inspiration!
Stay strong! You have many supporters!
With Love,
Gina
Jen, It was so nice to talk to you yesterday!!! I know that you are going to do just amazing!!!! Glad that u were able to enjoy the fair!!! I am soo excited to see u and meet your boys, Scottie can't wait either!!!! Much Love Jules
ReplyDeleteHi Jen,
ReplyDeleteI thank you for sharing your journey with everyone. I think about the phrase, "The only way out is through" and I see you doing it, you're doing it Jenn. You give me strength, you always do. I read your posts and remember my journey, I remember the tests that were torture, the loving family members, the beautiful bald head! I wanted to ask you if I could have a picture of you bald to put next to mine because bald women are SO beautiful! You are doing such a great job in taking care of yourself, doing fun things, looking at such beauty and positive things, looking at life with such a great attitude and loving your children at the same time. You are truly an inspiration to me and I love you dearly. I look at your picture every day in my living room, you and your wonderful sisters from Tommy's concert......you are my inspiration. You're doing it Jenn....the only way out is through and you're walking through it, you and your beauty. I love you honey. xo
PS and if you feel awful and have no inspiration and have a crappy day and cry....that's okay too. xo
Jen,
ReplyDeleteWe need a New word for strong...You are Amazing!!to say the Least..
So this is the age 5 yr. olds loose their teeth..No wonder Sky has been chewing on everything...just found out he has a loose tooth as well...lets see who looses it first!
Get out every second you you feel ok!! Its the best Medicine!! Well, Our boys are invited to a "White Party" Sat. Night, like in the "Hamptons" lol...or "Miami Vice",..lol...We shall See...Luv You...I think you may have found your calling...maybe you are a writer & didn't know it...You can start your own column, when this is all over...:)
angela xoxoxxoxox