Day +26 I actually posted last Wednesday but apparently it didn't go where I wanted it to so I thought you guys had an idea what was going on here. Sorry. For Christmas we're asking for time cause although you'd think we have a lot of it, it goes so quickly one cannot get everything done one wants to.
It's been one week since Jen's release. She has had to go to Outpatient Clinic every day since getting out of the hospital so technically she's home but time-wise she spends a lot of time there getting blood drawn (daily) plus other appointments as they see fit to care for her. She's still having liver problems and they keep adjusting, adding, removing various medications to see what works. She's getting infused at home by Dr. Dave who does a bang-up job seeing to her medications and fluids and even has various "shakes" filled with protein and calories to help her get some meat back on her bones. Jen's energy level varies so sometimes she's resting in bed but also hangs out with us downstairs when her pep level increases. Unfortunately, she'll have to have a bone marrow bx this week (Thursday) which no one (especially Jen) is looking forward to but it's part of their protocol and must be done. I'll let you know how that goes.
This past weekend Tom (Meg's husband) and Anthony (Meg's son) came for a long weekend and we were all so happy to see them, especially little Tommy who missed his playmate (Tom)!!! It was a wonderful weekend.
I hope this gives you an idea of our lives here. We'll keep in touch.
jo/mom/granny
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So glad to hear from you - I think about you all the time and send my love and prayers.
ReplyDeleteLaura Bryan
Hi everyone,
ReplyDeleteWe've been thinking about you all and wondering how Jen was doing. I know there was a lot of preparation and getting things ready for her to come home in WA. We are glad to hear she has some energy to spend time with all of you. Dr. Healthy Dave is fabulous we're sure at mixing protein shakes and making whatever else she needs to get stronger. Thank you for posting. Much love and prayers for all of you.
Jen, you're so on your way back to health and your life here in PA. Keep the faith and live strong.
Hugs and misses,
Wendy and Tom