Monday, December 7, 2009

Miracle

I meet with the my transplant team 2x a week - Monday & Thursday & I am on the red team. There is usually my nurse Jackie (who is a constant-she doesn't rotate), a fellow-almost a Dr. and the attending physician (who is basically the head Dr.-who comes in after all the details have been worked out, makes an appearance, gives his input and leaves). I think that is the hierarchy-anyway it's close. Well, the fellows and the attendings rotate what seems like weekly but should only be monthly-I think. And it is the end of the year-and one of them is going on sabatical blah, blah, blah. My point is that I have seen quite a few Dr.'s in the last 3 months. All of who have read my chart (I hope), all who know what what down with my liver. Which was during the transplant-actually after the actual transplant I started having trouble with my liver. They (The Team) could not figure out what the problem was but what they did know was that my bilirubin was on the rise! And rise is did to over 30-keep in mind .2 to 1.3 is a normal bilirubin level. I became a yellow/orange, was in the most extreme pain I have ever been in my life, bloodshot eyes, I was hallucinating and basically don't remember alot about that week.
ANYWAY, I got a new attending on the team today - a Dr. Paul Martin. I like him-I like all of them. So, the usually greetings, blah, blah, blah, I begin complaining about my diabetes-which is driving my crazy-for those of you who don't know I am now a type 1 diabetic and it sucks!
Well, Dr. Martin says "Well, I just came to meet the miracle". I'm like "oh really-who's that?"
He's like "You realize that the number of people who survive a bilirubin of 30 is less than 2%? Don't look a gift horse in the mouth"
My hands flew to my face, I started crying and have hardly stopped all day. I looked around the room at the others there and over to my husband who was as clueless as I was. No one ever told us. The team never warned Dave, my Mom, Meg-no one knew that I was likely to die in that hospital only a few blocks from where I sit right now.
NOW DOESN'T THAT PUT THINGS IN PERSPECTIVE~

4 comments:

  1. Chills went through me as I read this! OMG is all I can say. We asked for a miracle and thank God we got one!!

    XOXO,
    Tiara

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  2. Jen - Unbelieveable! Miracle indeed! Our prayers are being heard. Thank you for sharing this story. You have a whole team behind you - out there and back here at home! You're amazing! Keep up the great work - lots of love - Connie

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  3. A real modern day miracle you are! Believe in the power of prayer. We have so much to thank God for. There must be many more great things for you to do here on this earth Miss Jen. I wonder what they will be? I know they will be wonderful, just like you. How's your mom's eye?
    xoxo Wendy and Tom

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  4. Well I am not shocked at all~~I already knew you were a miracle and a beautiful one at that!!!!!!!!!!! Love u sooo...please call me 360 391 9383 I am done with school for a couple weeks so I am free to come down during the week please call me asap!!!!!!!!! Much love Julie

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