Monday, October 19, 2009

Day +13
Things are still questionable whether it's GVHD but her bilirubin count stayed the same, not going up or down, a good sign. It's 24 hrs since steroids began. Her blood sugar has risen and she had to receive insulin (common with steroid use), lungs and kidneys are still clear and she's being watched very carefully. Jen, except for bathroom breaks, hasn't been out of bed. She complains of trouble walking and pain throughout her body. She was retaining fluids quite a bit but that seems to be under control now. Her jaundice looks a little better but really is still in full swing. Her rash is gone. She's getting a lot of pain meds which help but do not relieve all the pain. Still a waiting game. But, her wbc's and neutrophils are still forming so that is terrific news. Sorry there's not more to report but at this point, we are all taking one day at a time and hoping tomorrow will be better for her and her test results.

jo/mom/granny
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7 comments:

  1. AnonymousOctober 19, 2009 at 9:47 PM

    to patti - i'm sorry i missed you posting on 10/9. God bless you and your courage. Julie keeps me informed of your progress and positive attitude. It was so nice of you to join our fight when you are going through one of your own. Every time I hear Barry Manilow (lol) I think of you. Funny, the things you remember. Take care of yourself and know you are in my prayers and thoughts. I hope our paths cross again real soon.

    jo

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  2. leighkarschOctober 20, 2009 at 5:03 AM

    Keep up the good fight, Jen. You can do it. Continue to have faith.

    Your current challenges are reminding me of when Harrison was born. All I heard about for a week was billirubin. It was scary, but he got through it, and I have faith that you will too. I think of this process, like I know you do, as a rebirth. Sometimes, it takes a while for your body to get itself in gear, but slowly and surely, it does. Despite setbacks, your body is progressing. Focus on that, and keep pushing ahead. You are strong and you can do this, Jen!

    Thinking of you and your family.
    Leigh

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  3. AnonymousOctober 20, 2009 at 7:34 AM

    Jo/Mom/Granny - Thank you so much for all of your updates. I know it is scary to watch.

    Jen - You are in the thick of things right now. I know how weak you must feel right now. But please be assured that as your new ANCs and total WBC continue to rise, they will begin to do thier job and make you feel much better. Take it one day at a time and expect short setbacks during this period. YOU WILL BE BETTER SOON ! <<<< Virtual Hugs >>>
    Ron A

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  4. AnonymousOctober 20, 2009 at 11:02 AM

    Hi Jen - It really does sound like you're going through the worst part of this whole ordeal. I think it's wonderful that those who have gone through this are in constant contact with you...it has to be very reassuring. We pray for you every day as we hold hands before dinner and you're in our thoughts constantly.

    Love, Mom Mom and Tom

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  5. AnonymousOctober 20, 2009 at 2:57 PM

    Hi Jen,
    We hope you feel better soon, we are thinking of you often and look forward to seeing you mat side. Please let us know if there is anything we can do to help on the Phillies coast.

    Terry and the GNWC gang.

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  6. AnonymousOctober 21, 2009 at 5:38 AM

    Hey Jen, glad to hear the jaundice is getting better, even though I thought yellow was a good color on you....I think of you everyday and hope to read positive stuff, and thank God it is..Keep up the good fight. XOXO Suzanne

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  7. AnonymousOctober 21, 2009 at 8:04 AM

    Jen, Glad to hear that things are going a little bit better. You just need to hit this disease like a bad habit!!! Knock it on it's a_ _. I love you sooo much and you are so strong!!! You are in my prayers as always~~~~ Love u!!!!!!
    Julie Jack And the Boys, Oh and Jeremy HA! HA!

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