Wednesday, October 21, 2009

day +15

i posted during the night for day +14 but can't seem to find it. Of course, I don't remember what I said. Well, it's now Wednesday AM and Jen is sleeping, receiving a bag of platelets. Today, they are going to do an endoscopy to look at what's going on. It should be able to confirm whether her problems are from GVHD or not. They will take a biopsy if need be. We'll have the results tomorrow, we're told.

It's not an easy time for Jen. All her counts are really going in the right direction. Even this AM, her bilirubin was down 8 points - great news! But, Jen is finding it harder to fight since she never gets a break from the pain, restlessness and anxiety she's going through. How many times can you tell her tomorrow will be better when it never seems to be: one more time, every day! All the side effects she's having are really hard to cope with. She's hardly out of bed, can't get comfortable and is receiving a multitude of drugs, antibiotics, supplements, glucose, anti this and that and pain meds - she can't sleep for more than 1 hr at a time. But she goes on, even though sometimes she doesn't want to.

Will let you know when we know.

Keep the prayers coming.

jo/mom/granny

5 comments:

  1. Jen and family,

    You will get through this! Keep fighting. You are not alone. We are thinking of you all day and praying for you.

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  2. You are an amazing family and I know that all of these prayers are going to see you through. Stay strong and we'll keep praying!

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  3. Jem and family,
    Stay strong and keep fighting. You will get through these difficult days! You are in my thoughts always.
    Love,
    "Maugie"

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  4. Jen and all,
    So sorry it's so darn hard. I am thinking of you and sending postive thoughts and hugs your way. One step at a time - keep going!!!!
    Laura Bryan

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  5. Jen and family,
    Keep the faith and know that it will pass, it has to. It seems like an eternity and I know that I would be feeling the same way you are. I'm sorry this is so painful and hard. We keep praying for your cure, your strength, your endurance, your faith.
    love you - Wendy and Tom

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