Day +4 - counts still going down and lots of challenges. There is a low dose chemotherapy that they give patients post transplant which help with graft vs host disease. Fortunately, the drug does help but has a miserable side effect called "mucositis". Well, Jen started taking the drug approx 2 days ago and the muco started right on schedule. Though they told us it would affect mainly her throat, she seems to have more trouble in her upper stomach/esophagus region. So, last night, when all else failed, they gave her a morphine pump. Not only does this help the pain immediately, but if you know Jen, she feels back in control since she's pushing the button to release the morphine. She's feeling much better now and trying to eat on her own. It will take about 6 more days before counts start back up so this will be a hard week for her. But, she's plugging along and coping as well as can be expected. Tomorrow is another day and next report may have totally different news for you.
PS - She still looks great, holding on to her hair, good color - she fools them all the time!
jo/mom/granny
Subscribe to:
Post Comments (Atom)
I think about all of you so often, you are truly a really special family, the way you keep up your positive outlook is so good for all of us on this end to hear...I check everyday for updates..thank you for thinking of us..God Bless ..Suzanne
ReplyDeleteJen,
ReplyDeleteWe think of you often and look for your posts. We are praying for you especially over this next difficult week. Although Amey did not go through transplant, we understand how hard it is waiting for counts to go up. Stay strong. With love, Anne
Jen and family,
ReplyDeleteThank you for keeping us updated. You are a great family team and that is important right now. Glad Jen is eating and everyone is staying positive. We are praying and thinking about all of you, every day. Big hugs to you Jen. We love you.
Wendy and Tom